← Return to Kidney cancer patients: Let's connect and introduce yourself

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@blueskies823

I have just been diagnosed with a kidney cancer. The Doc hasn’t decided what kind of medication/treatment that is applicable for me yet. But I have planned to tell my Doc that I want the cancerous kidney removed by surgery. What do you think? Please comment. Thank you!

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Replies to "I have just been diagnosed with a kidney cancer. The Doc hasn’t decided what kind of..."

Hi! I would think that he would have given you a ‘plan of action’. I have stage 4 kidney cancer diagnosed last September. To confirm, I had a CT scan and biopsy of pieces of my kidney. It was determined I had a large mass thus requiring full removal. I have heard that others have had a part of their kidney removed. I started with a general oncologist but after getting a second opinion, I am so glad I went to a cancer hospital where my oncologist only studies and handles kidney cancer!
I’m more than happy to discuss my process with you to give you my perspective. Kidney cancer is very specialized to each individual. Take care and please reach out with any other questions.
Koke

@blueskies823 Welcome to Mayo Clinic Connect. A few years ago a mass was discovered on my right kidney, during a regularly scheduled scan for my multiple myeloma. We did a followup to that mass, and I was referred to a urologist/oncologist, after the initial renal cell carcinoma diagnosis. We did a watch-and-wait for three months to observe any change in size. This was due in part to my existing multiple myeloma and also end stage renal disease already in place. Too much on my plate! We had already decided that when I started on dialysis, we would remove that kidney. After the watch-and-wait for nine months, with periodic scans, the urologist concluded this was not a cancerous mass, but rather a benign cyst due to its presentation and how it was acting.

I would strongly recommend a second opinion by a qualified specialist.
Ginger

I had my kidney removed ten years ago and have never regretted that move. However must remember that leaves you with just one kidney

No chill and see I was in the hospital and when I saw the blob that engulfed my kidney I was not leaving till they got that shit out of me I did not know the protocol I have been taking keytruda and lenvima for almost a year so far the tumor has shrunk and its not in my lungs anymore.