@lewin I'm sorry to hear that you still haven't found any answers from your doctors and are having trouble getting another appointment. You also started an earlier discussion on Polyneuropathy here - https://connect.mayoclinic.org/discussion/polyneuropathy-2/. I'm not sure if you have been diagnosed with Polyneuropathy or Autonomic Neuropathy or if you have seen a neurologist. If it were me, I think I would try to seek help at a teaching hospital or major health facility like Mayo Clinic or Cleveland Clinic. Here's a search function for finding a neurologist at Cleveland Clinic that shows their rating and some patient comments:
https://my.clevelandclinic.org/departments/neurological/staff?q=autonomic%20neuropathy&dFR%5BsearchCollections%5D%5B0%5D=113

@lewin I have been diabetic for nearly 50 years. I have had peripheral neuropathy (effects extremities) and autonomic neuropathy (affects internal organs). John has provided some good informative links. I hate dealing with insurance (a necessary evil). Will you update here as you hopefully make progress?

Hello @lewin. I noticed you had started a similar discussion some months back, so you will notice I have moved your most recent post here to provide an update to members who had joined you:
- Polyneuropathy: https://connect.mayoclinic.org/discussion/polyneuropathy-2/

Have you started with your primary care physician and requested a referral to a neurologist who would best see you? Or, are you looking for a second opinion?

I was very impressed with Muhammad Taher Al-Lozi, MD at Washington University in St. Louis. It took me about 6 months to see him and beforehand I had to submit all of my numerous test results. I was very impressed with Dr. Al-Lori and his team.