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My biopsy is scheduled soon on my upper right thigh (sarcoma)
Sarcoma | Last Active: Nov 9 5:00pm | Replies (43)Comment receiving replies
Jen , this is the best possible choice . As the road ahead can be a bit bumpy at times , maybe some potholes ahead , my job is to keep this road freshly paved . So the surgery ,when we do get to that point ,of the journey is a few days in hospital and 1-3 weeks recovery … I know that can be difficult yet the easiest part for me … The scans after chemo will reveal , how I am doing . That will be huge . Scheduling of chemo will be any day now . 3 straight days of intravenous .. jeez .. movies ? Books ? Online games ? Sleep .. I have no idea sitting or laying down for 3 straight days how that feels .. I am always active at some capacity . Are you doing well physically ?
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@rond306 You have a great attitude and I am sure you will figure out how to fill your time. With my son, they gave anti-nausea meds with his in-patient chemo that can
make you sleepy, as well as IV hydration. You may want to sleep or you can do any or all of the suggestions you mentioned. They will monitor you to make sure there aren’t any reactions, but if you feel up to it, I can imagine you could do laps around the unit. Bring a book or a tablet loaded with books on the kindle app., games and Netflix, etc. The hospital where my son was treated allowed him to use vouchers for the cafeteria instead of ordering off the menu so he could eat whatever appealed to him as chemo can affect the tastebuds. Take one day at a time. Hopefully the chemo will start shrinking the tumor right away! I am doing well, thank you. An outpatient procedure in July for a different issue, but hopefully that will be all until my annual transplant testing late Nov or Dec. All good!
You may meet others to exchange ideas and make friends in the hospital or if you search online for your type of sarcoma which can help. Not everyone’s path is the same, but sharing info is helpful. Take care and keep us updated!