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My Kidney numbers dropped 25 numbers in 10 months
Kidney & Bladder | Last Active: Sep 26, 2023 | Replies (27)Comment receiving replies
Yes, I am keeping track.All I really need to do is download all my conversations in my chart. Should I call the facility I am going to and tell them my Kidneys are having trouble? They are unaware, and I know my Primary did not discuss this with them. I am having my lungs imaged and my esophagus.When it was scheduled, I did not know as of yet of my declining eGRF. My appt. is on Monday. As you can see, my Doctors are not pro active. I do not want the CT scan IF it will damage my kidneys further, no way. I am not risking that. I monitor my BP at home every day, several times a day. Right now it is 131/72 pulse 80. I have a oximeter at home (You put your finger in it) and my oxygen is 100. My temp is 97.6, which is normal for me. I find it very important to monitor my vitals. Oh, I should mention I am a white 62 year old women and average in weight. I exercise every day, 1/2 hr. on the treadmill, then 20 minutes of squats, stretching, and then 20 min Irish dancing ( I am not trained, but do the steps for cardiovascular. All this working out and I feel like crap and worried if I have something terminal. How sad is that. I am a smoker, but have cut down and will be picking up my smoking cessation gum at the Pharmacy tomorrow. I am trying very hard.
Replies to "Yes, I am keeping track.All I really need to do is download all my conversations in..."
@sallylynn You are doing all you can from your seat in the house. Being aware of your situation is important, definitely. If I was in your shoes now [and I have been in that shoe store at least], I would ask the tech to confirm if this is a contrast scan, and what kind it is. Gadolinium contrast is hard on the kidneys; that is where it is cleared from the body. My oncologist ordered scans, and we discussed my eGFR levels at that time. We decided to skip the contrast because although it was above 30, he didn't want to take chances.
You have several people here offering support, so don't feel alone. Stand up for yourself, and advocate for your best health.
I am on peritoneal dialysis. i drink a cup of coffee in the morning, or split it half in the morning, half in afternoon [then it is iced!]. Plain water with True Orange crystals and crushed ice, about 36 oz a day. No sodas, no alcohol.
Ginger
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@sallylynn again your eGFR is not that bad yet so docs may not be recognizing that it has dropped. It is reasonable for you to wonder what is causing the drop and if it will continue. A nephrologist will make you feel better cared for.
CT scans and radiation won't hurt your kidneys but you can decline to have any contrast. Contrast is still okay for your eGFR technically but with what is going on I would probably deny it too.