Hello trixie1313 and thank you for sharing your information with me. Alas, we have had the most complete pathology available done to the tumor tissue and gotten second opinions and.....we've done it all. There is a chance it is enteric adeonocarcinoma of the lung, a lung cancer that they say is 'rare' but looks more to me like it's just under diagnosed. We've been watching and waiting for over a year now for the cancer to show up somewhere else (in the upper GI tract) to rule out those type of cancers and it has not. So, they are leaning toward this supposed 'rare' type of lung cancer. They even sent the tumor out for the most extensive type of cancer as the doctors are frustrated as well.
It is not common but sometimes cancers appear and then actually regress or go away and we never knew we had them. This was caught purely through a test for something else. At the time it was diagnosed my husband was in bad shape and feeling truly awful, so he presented as a very ill man. His symptoms were from a heart condition however that was easily fixed. Now he has no symptoms of any kind of cancer and has not this whole time. It's truly odd.
I am going to look into neuroendocrine tumor of the lung and the oat cell ca of the lung as well.

Thank you! Hugs!!

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