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How did your PMR begin?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 18, 2023 | Replies (114)

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@kberlyhouse

I had Covid (a moderate case of Alpha) in Nov 2020, and the migrating, "roving", myalgias began with the onset of Covid. I got over covid after 2 weeks, but the myalgias never disappeared. Then April 2021 I woke up and couldn't get out of bed or walk. The pain was excruciating and the stiffness unbelievable. I was a healthy, fit, trim 52 yr old woman and in one day crippled and functioning like a 99 yr old. A month later it was suspected that I had PMR. I am way too young and healthy to have expected this diagnosis. On an interesting note, my MIL got Covid in Dec 2019 before we knew what it was, and 2 months later woke up one day screaming in bed, after numerous doctor appts was finally diagnosed with PMR. What's with Covid and the Covid mRna that has triggered this disease?? Are the doctors even asking this question?

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Replies to "I had Covid (a moderate case of Alpha) in Nov 2020, and the migrating, "roving", myalgias..."

Hi @kberlyhouse, My understanding is that something triggers the immune system to go into overdrive and start attacking the body. My PMR followed a foot injury. My aunt's, a back injury. My guess is that COVID probably triggered your and your mother-in-law's immune systems to go into overdrive.

PMR and GCA are common in people 50 and over, more common as people get older, and more common in men than women. There are also some genetic markers and the highest rates of it are in Scandanavian countries.

My ancestry is primarily Southern European/Mediterranean, but who knows what my ancestors were up to years ago? My aunt, my mother-in-law and I all developed Giant Cell Arteritis as well.