Tomorrow is Surgery Day: NETs in pancreas tail

Posted by billyfeet @billyfeet, May 25, 2023

After a surprise CT Scan revealed a 2CM Neuroendocrine Tumor on the tail of my pancreas in February I am finally going in for surgery to remove it tomorrow. I have benefitted from the information gathered in the posts on this forum provided by the folks suffering from similar fates. I feel so much better prepared mentally for what lies ahead since joining this group. Thanks to all who participate in sharing experiences and knowledge. I hope to be able to provide some recovery experience posts as time goes by. Looking forward to having this behind me.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@billyfeet

Day2 of recovery has been trying. Bloating, breathing issues and pain are the order of the day. Pain got worse as day wore on…this was expected as I had a spinal injection of Morphene that was set to last 24 hours. Weird dreams, shortness of breath and pain filled the night. Going to drop all pain meds today…..hope for a BM!

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As much as it sounds impossible - it gets better every day! Try to move, walk! You got this!! Prayers!🦓💜

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@billyfeet

Day2 of recovery has been trying. Bloating, breathing issues and pain are the order of the day. Pain got worse as day wore on…this was expected as I had a spinal injection of Morphene that was set to last 24 hours. Weird dreams, shortness of breath and pain filled the night. Going to drop all pain meds today…..hope for a BM!

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Your body needs time to heal. I've been through this surgery myself. You will likely have good days and bad days but even on the bad days, your body is busy at work with it's healing process. Please take the pain meds if you need them. It's best not to let the pain get out of control, then it's harder to manage. You are in my thoughts. You can do this! 🙂

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I had the same surgery on May 8. It’s quite the surgery and the pain can be a bit much but as others have said, please stay ahead of the pain. I missed 2 doses at home and had to play catch up. Each day will get better. Just pace yourself and don’t over do anything. Listen to your body and rest. Let your body heal. Big hugs and prayers 💜💜

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@michellesimpson10

I had the same surgery on May 8. It’s quite the surgery and the pain can be a bit much but as others have said, please stay ahead of the pain. I missed 2 doses at home and had to play catch up. Each day will get better. Just pace yourself and don’t over do anything. Listen to your body and rest. Let your body heal. Big hugs and prayers 💜💜

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What pain meds are you currently taking at home? I may go home today. Pain is almost at nothing with what I a, getting in hospital. Forget the name….it is a NSAID….been off narcotics for days. How are you feeling at this point? Eating?

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@billyfeet

What pain meds are you currently taking at home? I may go home today. Pain is almost at nothing with what I a, getting in hospital. Forget the name….it is a NSAID….been off narcotics for days. How are you feeling at this point? Eating?

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When I first went home I was on 5 mg Oxy for the first 16 days along with Tylenol. Then I switched to Tylenol and advil every 4 hours alternating. I did not like the Oxy but I’m not one for taking pain meds of any sort. I have a lot of pain because they had to make a large 5” incision to get the spleen out because it began to bleed and I also have fibromyalgia and lupus which make a small issue more dramatic 🤪. I’m glad you’re going home soon. Big hugs for a smooth recovery.
Eating is a very slow process. I started out with chicken broth and egg whites. Very bland diet. Then I added a piece of marble rye bread with very little butter. I am still on a bland diet but have eaten chicken, pasta, broccoli and mashed potatoes, small pieces of Colby jack cheese and applesauce.

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So here I am 2 weeks post surgery. I spent 9 days in the hospital. The first 3 were horrible. But after that every day was less painful and better sleep. I ate small amounts of broth for a few days and then began to eat some solid food. Having a BM took 5 days…..and a suppository. Now I am having daily BM and just using senecot as a softener. After getting out of the hospital and coming home my sleep is 100X better! I sleep most of the night and a lot during the day. I walk a little….and can get up and down my stairs. I feel pretty good and have an appetite. I am very tired after just a small bit of walking. Still have a drain….about 70 ML/day outflow. Will see my surgeon in a few days for the first after discharge visit.

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@billyfeet

So here I am 2 weeks post surgery. I spent 9 days in the hospital. The first 3 were horrible. But after that every day was less painful and better sleep. I ate small amounts of broth for a few days and then began to eat some solid food. Having a BM took 5 days…..and a suppository. Now I am having daily BM and just using senecot as a softener. After getting out of the hospital and coming home my sleep is 100X better! I sleep most of the night and a lot during the day. I walk a little….and can get up and down my stairs. I feel pretty good and have an appetite. I am very tired after just a small bit of walking. Still have a drain….about 70 ML/day outflow. Will see my surgeon in a few days for the first after discharge visit.

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I'm very glad to know you are feeling better every day. I go in for the same surgery as you next week. I'm 65. I hope I have the stamina required. Do let us all know of your progress. Good bless and speedy recovery.

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@billyfeet

So here I am 2 weeks post surgery. I spent 9 days in the hospital. The first 3 were horrible. But after that every day was less painful and better sleep. I ate small amounts of broth for a few days and then began to eat some solid food. Having a BM took 5 days…..and a suppository. Now I am having daily BM and just using senecot as a softener. After getting out of the hospital and coming home my sleep is 100X better! I sleep most of the night and a lot during the day. I walk a little….and can get up and down my stairs. I feel pretty good and have an appetite. I am very tired after just a small bit of walking. Still have a drain….about 70 ML/day outflow. Will see my surgeon in a few days for the first after discharge visit.

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Great to hear your progressing well in your recovery 🙏🙏🙏.

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So the last few days have been trying……chills, fever of 100-102, general feeling of tired and out of it. I went to the ER because of the fever…..got prescribed an antibiotic and sent home. Taking Tylenolfor pain…..resisting getting into the OxyContin. If things do not get better I may have to. Seeing my surgeon tomorrow……..I wonder what pearls of wisdom she will shower me with.

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@billyfeet

So the last few days have been trying……chills, fever of 100-102, general feeling of tired and out of it. I went to the ER because of the fever…..got prescribed an antibiotic and sent home. Taking Tylenolfor pain…..resisting getting into the OxyContin. If things do not get better I may have to. Seeing my surgeon tomorrow……..I wonder what pearls of wisdom she will shower me with.

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I hope your dr can help you get some relief. I am 5 weeks post surgery and still have quite a bit of pain. Has your dr recommended a protein drink if you are not getting enough food during the day? Sending you big hugs and prayers that you feel better 💜💜

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