← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@lizward46

I am 76, female in excellent health. I thought I was doing all the “right things” to keep my mind and body healthy. Exercise, eating well, social connections, humor, travel, keeping an open mind then WHAMMO, PMR came into my life slowly in Feb 2023. I was officially diagnosed in May. Surprise is a modest word. I have a mouth like a sailor and can think of many other ways to describe this condition. At any rate, I live in the Washington, DC area and was able to quickly find a rheumatologist I can trust. So I am now on the prednisone treadmill taper with the hope that PMR will go into remission. Something I have noticed in my readings and in my own quest for a diagnosis is that many of us first go to an orthopedic surgeon for the PMR pain thinking it can be dealt with by surgery. I went to two surgeons who said no to hip replacement and diagnosed osteo arthritis. They sent me on my way with a script for PT. My PT (smart and insightful) is the person who finally told me to go to a rheumatologist for blood workup. My point is that if the ortho guys had taken some time to really listen to my symptoms they may/could have thought that this pain had other origins. I want to go to a orthopedic convention and give these doctors more information so they can think outside their own little boxes.

Jump to this post


Replies to "I am 76, female in excellent health. I thought I was doing all the “right things”..."

My Ortho is actually who recommended that I see a rheumatologist so some of them do have appropriate info. My insurance requires a referral to a specialist and my GP and I had to have several lengthy discussions before she ran some bloodwork. She didn’t make the referral until she saw my Sed rate and CRP which were extremely high. I probably would never have received the referral if those had been normal like others with PMR have reported. Education on PMR/autoimmune is likely needed for all of our medical professionals.

I was diagnosed in 2021by a Rheumatologist. I live in Canada and there is difficulty in getting specialist in our area. I worked n Health Care for 32 years and had been diagnosed with Arthritis in my Spine and Knees. Blood work did not indicate PMR. When I finally got a diagnosis we figure I had both PMR and Fibromyalgia. . Totally agree some of our Doctors need to think outside of the box. I wish you well on this interesting journey!