Samy and francine6829 - When you hear those words 'cancer' it's a horrifying moment. Cancer has this mystery surrounding it because the truth is, the doctors don't really know how to 'cure' it. You make it through the shock, then the treatments, whether that's surgery (often and likely in breast cancer) and then possibly radiation and chemo and immunotherapy and targeted therapy and.............the AI drugs. It feels like the onslaught of bad news and feeling bad will never stop. I lost seven pounds before I ever had surgery (stress) and then another 20 after surgery. I'm not complaining about the weight loss, I needed to drop those pounds (and that's the only good thing that I got from cancer so far).
It does get better!!!!! It's never a happy, unicorns dancing in a field of flowers near a golden rainbow thing...but it does get better. But it takes time. I had to wrap my head around 'why me', 'will it come back', 'will I feel awful like this forever',
I had complications during surgery and complications after surgery and lymphedema (which was corrected with revision surgery). That was all in the first 1 1/2 ...but now, 3 1/2 years in, I still worry, things are different for me, but I don't think about it all the time anymore.
I am settled with my decision not to get reconstruction and with not taking the AI's but it took a long time to process and accept my decisions. I didn't want to compromise my day to day well being but I also don't want to die from cancer. The choice is very, very tough.
Two things to consider: It's not an 'all or nothing' decision. You can try the AI's and see how you react. You can try 3 or 4 of them (I did) to see how they affect you and what you can manage and live with. And you can work with your doctor and other survivors to manage side effects or process your decision not to take them. The hardest part is having to make the decision between two sometimes bad choices. And.............breast cancer is one of the cancers with good outcomes for many. I prefer this to a cancer where the 'part' cannot be easily removed .....pancreas, liver, bones, blood.........We can remove our breasts or parts of them and still live normal lives, not so much our small intestine, say..... Those are the last words my surgeon told me as we went into surgery (I was very nervous).......she said, 'just be glad I'm not removing your pancreas'....ha ha.....it stuck with me
Keeping breast cancer from spreading to your bones or brain or lung or liver or..........that's a strong consideration for being as aggressive as you can be without ruining your day to day life.
And finally, the survivor rate of 5 and 10 years for breast cancer patients is very high. Don't forget to read those posts and articles as well. It helps to find glimmers of hope wherever you can.
Hugs..........the decisions are really tough. This Mayo site has been a real blessing for me....from the moderators to all the wonderful people here who are quick to lend and ear and share.
@cindylb
Well said, Cindy! I had my first lumpectomy which showed invasive and then asked for an MRI which found neuroendocrine differential. NET meaning my cancer can pop up anywhere, i.e. bone, brain, pancreas, etc. They can't get rid of it only control it when it moves on, but the radiation probably took care of the invasive. My surgeon opted to remove all tumors and then reduce both breasts. Her explanation was that even with total mastectomies, there is still breast tissue and cancer does return to mastectomy patients..unfortunately. So even though I have gained the knowledge of "never knowing" my future, I have gained a cute new curly hairstyle AND I've gone from an F+++ bust to a B- or A+ so I no longer look like Ma Kettle of the movies! I have also come to the realization and decision that I will no longer let cancer define me...rather, I am moving on with my life. Yes, I will keep watching, but I'm choosing to live, even if it iss with the aches and pains of the AIs. As Ma Abner of the Lil' Abner comics used to say, "I has spoken!"