Hi Maria,

I noticed you mentioned living in California and you feel like you rheumatologist is "shooting in the dark". I am in NorCal and was recently diagnosed with EF and highly recommend my rheumatologist, Dr Victoria Marie Kelly (she is part of the Stanford Heatlh Network). Her wait time for an initial visit is quite length (3-4 months) but she is super attentive and thorough. In her decade long career, she has helped ~8-10 other patients EF.

I'm still in the early stages of treatment (currently: 60mg prednisone for 14 days) but so far, my improvement in quality of life and reduction in constant debilitating pain has been exponential. For a time (pretreatment), I started to wonder if I could even remember what it was like to not be in constant pain or be fully independent with my daily tasks (yaeh dark dramatic thoughts lol). I've recently started seeing a PT to try to regain my range of motion and mobility. Not sure what the future holds and if I'll ever be 100%, but for now I feel optimistic 🙂

Bev