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DiscussionGCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)
Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:20am | Replies (277)Comment receiving replies
Replies to "Thank you, Grammy! Yes, it is frustrating, I had to wait 9 months to see this..."
@nativeoregirl I just wrote you the longest response...and poof it disappeared, so glad I found you again.
This is going to be condensed...I felt terrible about your biopsy, that it was such a bad experience. You mentioned 'eye doctor'. Are you in the States? When I went to ER when I lost sight in left eye...they scheduled my biopsy for five days later...told me to see an ophthalmologist (I don't think they had a clue) and set an appointment for 12 hours later. Really critical wasted time.
The only person who dictates my treatment or prescribes the pred and Actemra is my rheumatologist.
Your absent rheumy and dangerous office staff....need to be seeing you more regularly---at least that is my treatment. Actemra levels out the inflammatory marker in your blood test, CRP and ESR. If you are on just pred, my rheumy did that blood work monthly. I'm concerned you are being watched appropriately. Is getting a more available rheumy, monitoring you an option?
I keep watching YouTube videos on watercolor..I feel I use it like acrylics and have to loosen up and let the water do its thing...difficult for me, but I love it. Time is an issue!! My best💞