Welcome! I'm sorry your have been diagnosed with PMR. I hope your journey with PMR goes as well as it possibly can under your set circumstances. We all have a different set of circumstances so everyone with PMR is unique in their own way. What do you anticipate doing in the way of treatment for PMR?

I'm sure we would all appreciate your input on wide range of topics. I'm curious about what kind of help you will be getting from your physician for treating PMR. It doesn't seem like there is much anyone can do. "Long term" prednisone is the treatment until we take prednisone "too long." Then the approach by many physicians is to tell their patients to taper off prednisone as soon as possible. The reasoning is that their patients no longer have PMR or it isn't PMR if it takes more than 2 years to taper off prednisone.

I was diagnosed with PMR in 2007. My diagnosis is still PMR but it "might be in remission" thanks to Actemra (tocilizumab) which was tried in 2019.

Reactive arthritis with uveitis was diagnosed around 1995 when I was found to be HLA-B27 positive. PMR was diagnosed in addition to reactive arthritis and uveitis. My rheumatologist calls it a full range of rheumatology problems or "systemic inflammation." Prednisone was the only option until treatment with a biologic was a huge step in the right direction. For nearly 30 years it was all about prednisone and trials of DMARDs.

Good luck an I hope your journey goes well.