Need hope: Neuropathy from chemo

I got neoropathy in my feet from Taxol during my chemo. I can't drive. I take a lot of supplements and gabapentin. The Gabapentin helps me a lot, but what I've found really useful is a patch by VoxxLife. It sounds like a marketing
ploy, but it isn't. I use the Liberty patch that helps with the stinging and my balance. I'm 81 years old.

Hi raebaby..I have slight neuropathy in my left foot. I tried some asperbream with lidocaine and it helps. Haven't done icing but also read some have luck with capsaicin cream or patches. Have not tried that yet. Good luck and keep. Us posted.

My Dr diagnosed me with neuropathy in 2015, I was told to stay off my feet when it was bad. I had never heard of it and did not know how to pronounce it. I had the dropsies from the early chemo in 2003, but it was not addressed by the doctor team. I was careful with glass! My palsy was so bad the only work I could do was commercial cleaning. Even with cancer I had to work in order to get by, disability insurance helped but I couldn't get housing even though I was terminally ill. Another thing I noticed is I had to go to a psychologist for my medicine and we not once talked about the fact that I had 30 days to live. Or the fact that my friends were not handling the diagnosis well, or anything else about the fact that I could have dropped dead at any moment. I couldn't have life or burial insurance if I had state aid. I believe a few things should change. And when I was told that the regime was not working on my cancer and to put my affairs in order the psychologist was no longer available to help sort out my feelings. I was still alive in 2007 when Mayo was testing a new series of chemo, and the correct combo was found in 2018. I have overcome the dropsies and only experience the "bamboo spikes in fingertips " now, which sucking on the fingertips helps. So if you ever run into me and I am sucking on my fingertips like a deranged person, just smile. It works and doesn't take long. My feet are still swelling on the bottom and hard to walk on, Very Sturdy shoes help for that. It is the foot support of the shoe. So, it does get better.

I had an appointment with my oncologist today. My only problem now is the neuropathy in my feet from the chemo. I told him about how the Voxxlife Patches were helping me. He had actually heard of them and believed they work.

It depends a lot on what chemo drugs are in her regimen. With my first round of FolFox 5F/U, they were giving me Dexamethasone steroids as part of the regimen. My neuropathy got so bad in my hands and feet I was almost debilitated. Turns out, the steroid can cause permanent to semi-permanent neuropathy. Some of what I'm going through will be lifelong and will never recover...I've lost all feeling in my fingertips and the soles of my feet have been on fire for nearly two years now.
I have since demanded all steroids be removed from my regimen...to the chagrin of my oncologist, but it hasn't gotten worse, and, in fact, the treatments are actually easier without the steroids.
You'll have to talk to your Doctor and/or care team to find out for sure, but there are definitely side effects that can be permanent...oncologists seem to not want to discuss these possibilities, or they choose to minimize the potentially permanent impact some of these side effects can have on a person.
My first year I worked with an oncologist that didn't seem to want to explain anything. I, finally, on the advice of a friend, got a second opinion, and now have an oncologist and care team that listens and is willing to adjust my meds as needed to reduce some of the more serious side effects. Do not be afraid to keep pushing your mom's oncologist to make adjustments to make her more comfortable...

You can request to have the Oxaliplatin reduced. My oncologist agreed to do that for me once I started experiencing neuropathy (bad tingling in my fingers). I am a caterer & need to have use of my hands without this sensation. I cannot cut or touch anything cold. They are reducing it to 80% this week. They have to find what works for you. There are no bad results from cutting the dose. It has still proven to be effective. It’s about your quality of life!

Two words: Kali Phosphoricum (Boiron homeopathic remedy). Available on Amazon or at any health food store. It works in about 10 minutes. Not joking! I looked up drug interactions with all chrmo drugs I am on (5-FU, Oxaliplatin, Irinotecan & Leucovorin). No adverse effects on either of the adverse drug effects website.

Try it! It works wonders! Dissolve 2 of the tasteless pellets under your tongue. Thank me later!

What is this taken for? I have neuropathy in my feet and numbness.

Neuropathy

I ordered from Amazon yesterday! Do you take it every day, or just when symptoms are present?