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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
@bfh3 thanks for replying directly - was it your PCP who increased to 30mg - or did you ask ? So you and i and many many other split the dose , mornings are not pain free otherwise ; And our experiences that 2-3 days after ( not even really " strenuous" ?) activity created a situation of prolonged morning pain - I have seen others comment on this as well.
In this figure from Lundberg et al 2022 Update on Polymyalgia Rheumatica, I am looking to figure out what are the current theories about 'Damage or Pathogen-associated Molecular Patterns'
Today i will decrease from 30mg ( 3 X 10mg) to 27.5 mg . My strategy will be to lower afternoon dose. I will keep going to aqau-PT and aqua ZUmba and try to take a bike ride around the neighborhood !!
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Hello! My rheumatologist recommended the increased/split dosage, after my 2nd 2-day stretch of over-the-top morning pain in 2 weeks. So I did ask, but it was really more "complaining" about the symptoms not getting better. Looking back, I was probably "too patient" before "raising the flag", thinking that, over time, the 15/day dosage could've made the symptoms gradually disappear even though the 20/day did not.
My PCP has not been involved since he referred me to the rheumatologist, although I've been keeping him in the loop on my progress.
To your earlier question, I asked my rheumatologist this morning when I should begin my taper. Since the new dosage (20+10), my symptoms have almost disappeared but not quite, so I asked if I need to wait until "all" symptoms disappear before the taper, or taper ASAP, since they've been almost negligible for 9 days now, but stable. My guess is that, if my shoulders have stayed about the same for 9 days, 2-3 more may not make a difference. I will keep you in the loop on how that goes.