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Success with Prolia?

Osteoporosis & Bone Health | Last Active: Jan 11 1:02pm | Replies (128)

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@ans

I completely agree with your sentiment, but I too have found I need to do my own research to understand and help guide my own treatment. Osteoporosis is very complicated. A lot goes into getting us there, and a lot needs to be addressed to get us in a better place going foward. I too am a retired medical professional and thankfully that helps in my understanding of information. I do enjoy learning and understanding about medical topics or I wouldn’t have become an Occupational Therapist, however it has sort of taken over my life recently. Last August I fractured L 1 going from sit to stand from a very unsupported couch. Flexing my trunk foward got me because I was in a bad, low position to start and didn’t know anything about keeping my back in an extended, aligned position. My fall was spent recovering , saw my first endocrinologist in December who recommended Forteo to start with and Reclast as the follow up drug. When I asked them to get specific about actual weight bearing exercises they’d recommend I realized they had little to say. WOW, I was struck!! As an OT I have a background in exercise and have been a very active, athletic person my whole life. Prior to my fracture had been doing yoga 2-3x/wk, walking about 2-3 miles /day, hadn’t yet returned to the gym after the whole CoVID thing, and played tennis in the spring. The response was no more yoga, stop tennis, if walking, it should be a at quick pace. But, thankfully they mentioned their was a PT on YouTube, Margaret Martin PT that could provide some information. That’s where I started and from their I’ve taken a deep dive. My days revolve around exercise and study of osteoporosis. I participated in the “More Natural Approaches to Bone Health and Osteoporosis 2.0 Symposium “, hosted by Margie Bissinger at the beginning of April. I can’t say enough about how much information was shared throughout that solid 7 days of experts in the field. Before that I learned about the Marodyne, a LIV -Low Intensity Vibration platform -created by Clint Rubin and am awaiting its arrival. Currently , I am making my way through the book, Great Bones. What I’m grappling with now is the next step. Finding a local Functional or Integrative physician that will have the understanding to assist me in getting the testing that should be done before one decides their course of action. I’d like to avoid taking meds but because I’ve fractured I’m pretty sure that will be everyone’s recommendation at least for a short time. My dilemma is, for the most part, if you start with meds you’ll be on one or another with some possible holidays, for life. In the meantime my T scores could be getting worse but I’m committed to do all I can do naturally and feel good about the decision when I make it to go on one of those drugs. Hopefully what I’m doing for now will keep me safe, meaning fracture free till I get there.
Well, that was a really long winded response!!

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Replies to "I completely agree with your sentiment, but I too have found I need to do my..."

Perhaps long winded but extremely informative. I have nothing but total respect and admiration for your devotion to dealing with your condition. WOW....

If you do not mind, could you please share a couple of things? Your age. Your DEXA scores.

Perhaps if my profession had been related to medicine, or even to science, it would be less challenging and time consuming to research, review, and comprehend osteo related info. Then adding into that mix, the sorting out of all the fringe and outlier stuff on the Web.

It is why I appreciate MayoConnect and its effort at monitoring postings and occasional corrections. Have you discovered Boston Osteo on UTube? Not a deep dive but nonetheless helpful....at least for me...and even though my learning preference is reading, not videos.

I am reluctant about taking meds, but not vaccines, for just about any condition. Realize, however and unfortunately, that is what medical treatment in the USA is all about these days.

I too have been a tennis player most of my adult life. I still love it at the age of seventy three; the quality of my life will shrink considerably if I had to give it up. Because I had a rather miraculous result, in Dexa terms, after only two Prolia shots, I remain on the court and happy.

I hope you will share what you learn as you travel your information road.