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Success with Prolia?

Osteoporosis & Bone Health | Last Active: Jan 11 1:02pm | Replies (128)

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@rjd

I wish you the very best of luck....for whatever it is you are searching. Are you newly diagnosed?

I find it exhausting and time consuming to do research about matters I believe professional medical practitioners should know and obliged to stay current. I say this as a retired professional.

I do want to know enough to have intelligent discussions about medial treatment. However, I would prefer to spend my time during retirement on other things. Is it too much to ask that my doctor be better informed than me on any particular issue?

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Replies to "I wish you the very best of luck....for whatever it is you are searching. Are you..."

I completely agree with your sentiment, but I too have found I need to do my own research to understand and help guide my own treatment. Osteoporosis is very complicated. A lot goes into getting us there, and a lot needs to be addressed to get us in a better place going foward. I too am a retired medical professional and thankfully that helps in my understanding of information. I do enjoy learning and understanding about medical topics or I wouldn’t have become an Occupational Therapist, however it has sort of taken over my life recently. Last August I fractured L 1 going from sit to stand from a very unsupported couch. Flexing my trunk foward got me because I was in a bad, low position to start and didn’t know anything about keeping my back in an extended, aligned position. My fall was spent recovering , saw my first endocrinologist in December who recommended Forteo to start with and Reclast as the follow up drug. When I asked them to get specific about actual weight bearing exercises they’d recommend I realized they had little to say. WOW, I was struck!! As an OT I have a background in exercise and have been a very active, athletic person my whole life. Prior to my fracture had been doing yoga 2-3x/wk, walking about 2-3 miles /day, hadn’t yet returned to the gym after the whole CoVID thing, and played tennis in the spring. The response was no more yoga, stop tennis, if walking, it should be a at quick pace. But, thankfully they mentioned their was a PT on YouTube, Margaret Martin PT that could provide some information. That’s where I started and from their I’ve taken a deep dive. My days revolve around exercise and study of osteoporosis. I participated in the “More Natural Approaches to Bone Health and Osteoporosis 2.0 Symposium “, hosted by Margie Bissinger at the beginning of April. I can’t say enough about how much information was shared throughout that solid 7 days of experts in the field. Before that I learned about the Marodyne, a LIV -Low Intensity Vibration platform -created by Clint Rubin and am awaiting its arrival. Currently , I am making my way through the book, Great Bones. What I’m grappling with now is the next step. Finding a local Functional or Integrative physician that will have the understanding to assist me in getting the testing that should be done before one decides their course of action. I’d like to avoid taking meds but because I’ve fractured I’m pretty sure that will be everyone’s recommendation at least for a short time. My dilemma is, for the most part, if you start with meds you’ll be on one or another with some possible holidays, for life. In the meantime my T scores could be getting worse but I’m committed to do all I can do naturally and feel good about the decision when I make it to go on one of those drugs. Hopefully what I’m doing for now will keep me safe, meaning fracture free till I get there.
Well, that was a really long winded response!!

@rjd Wishing you the very best in your journey as well!!
And hoping retirement can soon begin to be more what you expected !!