← Return to Newly diagnosed with thyroid cancer and have 2 main concerns

Discussion
Comment receiving replies
@lise01

@cocha I was the same -- zero signs or symptoms, which I guess isn't uncommon. I was doing a routine recheck ultrasound on a small benign nodule on the right side that has been there for ages, and was absolutely blindsided when I was told there was a very suspicious nodule on the left. I came very close to cancelling the appointment because of a scheduling conflict and who knows when I might have made a new one ...

Active surveillance has been widely accepted and practiced in Japan for some time now and there is a growing acceptance of that approach for small, low risk nodules in this country. There are also studies/trials going on that are looking at active surveillance on PTC nodules up to 2 cm. They can stop growing, and even shrink sometimes, and never pose a problem. My doctor was telling me that the actual number of cases of PTC annually is likely drastically higher than reported cases -- without symptoms they go undetected, and often don't pose any risk to health or survival.

One of the reasons I picked my surgeon is because he, like some of the top of the field doctors and researchers in this country (Dr. Michael Tuttle at MSK, for one -- https://www.mskcc.org/news/msk-study-bolsters-use-active-surveillance-papillary-thyroid-cancer), believes that thyroid cancer is, broadly speaking, over-treated. From all that I have read there are some pretty rigid criteria for active surveillance to be a consideration -- some nodules just don't fit the requirements. We tried active surveillance, which I was totally on board with, but when my nodule grew a little my doctor changed his mind and felt more comfortable proceeding with the lobectomy.

Before I found out I would need the surgery I was going to participate in a study that Dr. James Wu (https://www.uclahealth.org/providers/james-wu) at UCLA Medical Center has been conducting , following patients opting for active surveillance. He's an endocrinologist there. For the study they need participants to go to LA once or twice a year for ultrasounds. I figured it would be a good way to get an extra set of eyes on this thing twice a year, plus be able to contribute to research. Not sure if you want to deal with LA, but just another resource, if you want to get a consult from someone who knows a lot about it, to see if you fit the criteria for that approach.

Re: natural remedies, I was already taking pretty much everything on the list you mentioned ... plus I don't drink or smoke, am pescatarian, exercise regularly, eat organic/tons of fruits and veggies and avoid the bad fats and refined sugar ... and I still got this. 🙁 I don't doubt that the alt remedies are good, but how much they can prevent thyroid nodules from growing or spreading, I just don't know ... but I am definitely being hyper-vigilant about keeping up the healthy stuff!

Jump to this post


Replies to "@cocha I was the same -- zero signs or symptoms, which I guess isn't uncommon. I..."

This is great information @lise01 . I looked up Dr. Michael Tuttle and he sounds like a doctor who is approaching medicine and his patients the right way. I wonder if he does second opinions, I would love to consult him.
I'll reach out to Dr. James Wu as well.

Another alternative remedy I have come across recently is an Ayurvedic medicine called Kanchanar Guggulu. Never heard of it before but the testimonials look promising. Amazon has several brands selling it. Yeah, about alternative remedies - there is not an exact science and there is some amount of trial and error involved in making them work in your favor.

I'm in the exact same boat as you about exercise and healthy food habits, and I still got this. But my stress levels were high for a long time and I attribute this aberration (cancer) largely to stress. 🙁