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Polyarteritis anyone?

Autoimmune Diseases | Last Active: Jun 20 9:47pm | Replies (27)

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@2catmom

Sorry you’re feeling poorly @efg4me

If your symptoms are cutaneous and don’t involve major organs consider seeing a dermatologist. Choose one who has seen vasculitis patients: the more, the better!

I am going through a flair of my cutaneous polyarteritis nodosa. With skin-only symptoms, I didn’t make the cut for a clinic appointment with rheumatologists at the major academic medicine, vasculitis clinic in Chicago. Fortunately, the dermatologist who biopsied me referred me to a metro Chicago vasculitis dermatologist saving me from a trip to Penn’s cutaneous vasculitis clinic.

There’s a general introduction to cutaneous polyarteritis nodosa in the 2022 article. A number of vasculitis dermatologists are authors of the 2018 paper. Perhaps one is local to you.

2022 Treatment of cutaneous vasculitis
https://www.frontiersin.org/articles/10.3389/fmed.2022.1059612/full
2018 Nomenclature of Cutaneous Vasculitis
https://onlinelibrary.wiley.com/doi/epdf/10.1002/art.40375

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Replies to "Sorry you’re feeling poorly @efg4me If your symptoms are cutaneous and don’t involve major organs consider..."

Thank you for all your info! A dermatologist is where I started. I’ve been having these lesions off and on for many years but only 2 or 3, they never hurt, they didn’t itch. So, when I got a few this last time they looked more severe than in the past. I saw derm and he told me they were something else and a week after I saw him the lesions multiplied like crazy, they aren’t healing, they’re bursting open so I went back and asked for a biopsy. I see a rheumatologist tomorrow and idk what to expect. I also don’t know if the biopsy tells them if it’s just cutaneous (my legs are in pain, my joints hurt, my muscles are “heavy” and fatigued; most of my lab work is fine so far so I just don’t know. Prayers would help!! Thank you for your time

I did have one more question. If you only have cutaneous, do they still treat you with meds during flairs?