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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Feb 17 10:21pm | Replies (151)

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@astanko

Hi, @jimbontexas, what is your first name? My name is Ame Stanko and I live in San Diego. At the age of 56 I was brilliantly diagnosed within one month and treated. I've made pretty much a full recovery (so far ... knock on wood). I'd be happy to speak with you and your husband and share any info I can. I have a follow up meeting with my Neurologist next week actually. I'm at (619) 507-6176 (my number is all over the internet already due to my web business). I was treated with high doses of Prednisone starting March 16th and then weaned off by October 4th. I can't recall what my taper was, but I can look it up. I've kept notes all along. I've had several Rituxan infusions with another due at the end of June (Rituximab this time). My infusions have gone great, had one minor reaction the first time (got itchy ears) but the nurses were very proactive and after a break we continued with no problems. My last MRI showed only gliosis (scar tissue) ... NO white pin pricks of lesions. I have a few minor residual numb areas but really I'm okay. It was all a wake up call for me, so I'm taking much better care of myself then before what I call my brain accident. I suspect that my episode of CLIPPERS was brought on by environmental toxicity (cabinet stripping and painting chemicals) and a lowered immune system due to stress (we had just moved). Please feel free to call. Leave a message and I'll call you right back. Hang in there!

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Replies to "Hi, @jimbontexas, what is your first name? My name is Ame Stanko and I live in..."

@astanko. And @jimbontexas. I think it would be better and safer for you to communicate thru the private message section. You can exchange phone numbers in private messages and then safely call each other. Go to the top right hand corner of this page and click on the person icon. Then you can select the messages and click. Let me know if this works OK