← Return to If you had Whipple surgery, what are you eating or not eating?

Discussion
Comment receiving replies
@markymarkfl

I'm now 11 months post-Whipple, which I had 8 months after my first PC diagnosis. I found out I was newly diabetic at the same time I found out about the cancer, and have required insulin ever since.

FWIW, I learned the existence of "steatorrhea" and its difference from diarrhea after the surgery. Steatorrhea is specifically the oily, floating, foul-smelling, orange-colored stool that comes from undigested fats.

I had always eaten a lot of Atkins bars and other "sugar-free" snacks, but with the diabetes "side effect," I started eating even more. Unfortunately, most of them use variations of sugar alcohol as a sweetener, which made my diarrhea/steatorrhea worse, so those are mostly out of my diet now. Real sugar can also generate a lot of gas in the gut when it decomposes, but that's a price I'll sometimes pay willingly when comfort food is needed.

Coffee creamer (heavy whipping cream) was the next to go. I found the Starbucks Zero creamers tolerable. Ice cream and real butter are now only consumed in moderation.

I still eat a ton of meat; the calories and protein seem to help me deal well with chemo. But I'm now up to three 36000-unit Creon capsules (108,000 units) with most meals. Timing is sometimes key. One capsule before the meal, one in the middle, and one at the end seems to be a workable formula for me. It helps to stick with leaner meats, and go easy on any oils when you sautee. Fried stuff (fried chicken, especially Buffalo wings with a butter-based sauce, can be a disaster.)

A colleague who had the Whipple a few years before I did gave me two words of advice: "adult diapers." I laughed, but confess they got some use the first 6 weeks after my surgery. If nothing else, for a little peace when trying to sleep through the night.

Regarding gas: I think the tradeoff is gas with too much enzyme, diarrhea/steatorrhea with too little enzyme. I have to say I'm happy to have gas, when the alternative would be poop!

The Tums anti-gas chewables work OK for me. I've read of other folks having good luck with Gas-X. I rarely need the Immodium AD anymore, but take it proactively before a big event or a chemo session.

Everyone is indeed different, but 8 months post-op, I imagine your digestive tract itself is all healed up, and it's just one or two trigger foods (or classes of foods) causing your problem.

Jump to this post


Replies to "I'm now 11 months post-Whipple, which I had 8 months after my first PC diagnosis. I..."

Thanks so much! This is all super helpful! Yes big fan of the depends at night lol. My issue is the every morning dumping sometimes in the night if I eat too late in the evening. Had not heard of the steatorrhea before. I will work on the sugar and extra fats makes total sense. Has your weight changed at all? I am worried about gaining weight back. It’s been really hard.