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drug resistant seizures

Epilepsy & Seizures | Last Active: Aug 11, 2023 | Replies (16)

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@grammy82

@psychogranny I'm so happy you are not under the care of the genius that thought church brought your seizures on! There is a place for him where he doesn't see patients; I hope~!!😕😕
I had to Google catamenial even though I've been dealing with epilepsy since 1955 when they thought phenobarbital was a cure-all. I'm so sorry you can't seem to get more control than you are experiencing. Reading your post ...you certainly have tried everything, it seems.
I found it amazing that Melatonin helped, but your explanation clarified why. I have so much faith in the Mayo Clinic or centers in cities like Chicago, Boston, or Dallas. Do you think pursuing one of those avenues would help?
I'm 82 for a few more months, and having to take steroids for GCA meant watered-down seizure meds, but I was put on Keppra at age 79, and it has worked. I have temporal lobe also.
As I'm sure you do, I wish there would be some combo of hormones and meds that would work.💞

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Replies to "@psychogranny I'm so happy you are not under the care of the genius that thought church..."

Portsmouth Naval Hospital, Wake Forest University, University of Miami, UVA, Charlottesville, Harvard, and innumerable civilian docs.