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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jan 25 6:35am | Replies (896)Comment receiving replies
I am looking for help with figuring out my condition. Early in May I developed a mild tingling in my tongue, then my fingers started tingling. It has now progressed to my hands, feet, upper back, lips and nose. I also have a persistent pain below my right shoulder blade and a globus sensation in my throat and upper esophagus. I also have fatigue and feel off balance when I walk fast or try to run. I am not diabetic. My labs are all normal and have had a normal brain MRI. I am scheduled for a nerve conduction test in a week and am awaiting a referral to a neurologist which as a health care professional, I know can take months. I have always been an active person, logging 5-6 miles 3-4 times a week with a combination of jogging and walking and find it extremely frustrating that I am unable to continue this. I would appreciate any insight that anyone can provide. Thank you in advance.
Replies to "I am looking for help with figuring out my condition. Early in May I developed a..."
Hi Galb
I too am experiencing non diabetic neuropathy in my intestines(slow gut) ,right shoulder and heart.
Like you I was a very fit person walking 10 miles plus rock climbing on weekends.
Pretty sure these are complications from my very low levels of potassium which resulted in a conns diagnosis.
My conns is settled now but I started with tingling and decreased ability to feel heat on my legs.I also had very low vit d levels,then osteoporosis diagnosed after scan.
Multiple checks but no diabetes.
I appreciate your frustrations ,it's awful having your life taken away from you!
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Hello @galb, Welcome to Connect. I'm hoping it doesn't take months to figure out what is causing your symptoms. Wondering if a vitamin deficiency might be a possible cause. Here's some information I found that sounds similar to what you are describing for symptoms.
"Vitamin B deficiency
You might also have a tingling sensation in the tongue and in your hands and feet. At the same time, you may feel very tired all the time, because both of these B vitamins are needed to make red blood cells and keep your nerves healthy. Low levels of these vitamins can lead to anemia."
--- Tingling Tongue: 9 Possible Causes - Healthline: https://www.healthline.com/health/tingling-tongue
Do you think this might be a possibility?