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PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (445)Comment receiving replies
I have a steroid card and record every month my dosage the last 6 months have deen a nightmare for me at 68 I was a fit as anyone you could meet fast forward to today and my body is wrecked to make matters worse I now have arthritis in both hands trying to manage both is a nightmare the pain is brutal at times no one has ever sat me down and advised me what to do the pmr is something I think I was the first patient my doctor had come across I personally think I have to see a specialist he thinks different all I'm asking for is some kind of help it concerns me the length of time I will be on steroids because of the side effects
Simple questions to ask like can i drink a glass of wine with my dinner or can i have couple of pints 1 day a week is it safe to drink or leave it alone completely I have to explore the net to get answers that's how I came across the mayo clinic yesterday at least you can communicate with people who have the same condition as myself for breakfast this morning I'm going to try weetabix as I read it was safe cereal or alpen Musli maybe you or someone else can tell me if I'm doing right cheers for taking the the time to read this
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I find your post very interesting since I was first diagnosed with PMR and then diagnosis was changed to inflammatory polyarthritis by my rheumatologist. I question this new diagnosis and suspect the arthritis is related to PMR. I continue to have muscle aches whenever I am still for even moments, and the arthritis in my hands is very frustrating. The muscle aches go away with movement, but my hands are swollen and hurt most of the time, especially in the morning. I am down to 3.5 mg of prednisone and am on hydroxychloroquine. I am not sure the hydroxychloroquine is helping the arthritis as my hands don't feel functional until the prednisone kicks in.
I have not been drinking any alcohol since my diagnosis in April of 2022 and do miss an occasional glass of wine with a nice dinner. However, I want the meds to work as well as possible so have made the decision not to drink.
I feel that I shouldn't continue to post on the PMR site, since my diagnosis has changed, but I still find help with the tapering and find the arthritis in the hands with many PMR folks interesting even if my rheumatologist thinks it's a totally separate issue.
One rheumatologist told me the muscle aches are not PMR as the aches would not go away in just a few minutes if it was PMR. It would instead take 45 minutes. Would love to hear comments from all of you, and thanks so much for sharing your journey.