Cobraman: Hi! I received diagnosis of small intestine (duodenum) NET tumor that had metastasized to liver October 2022. I began Samotuline Depot injections (Lanreotide) the next month which continue every 28 days. Six months later I have had minimal symptoms. However this month a couple days after shot - sores have appeared in increasing numbers on my face (nose, lips) that are painful. Nothing seems to help. Have you or others experienced this after treatment shot?
I too wonder about what my future will be living with this diagnosis hanging over my head. I know it is best for us to have positive outlook; however, daily I wonder how much quality life I have left to live. The unknown is scary.