Are you taking Reclast for osteoporosis?

Once a year for 3 years

Hi Chris,
I fell because of the ice hidden beneath snow. As I placed my foot on the curb, it slid onto the parking lot and I fell forward. I'm 79 and realize balance is an issue, but so far so good. Thanks for the suggestion. I said I believe Tymlos is the reason, because they state it as one of the side effects! I googled it. No one can determine it positively, but I haven't had one since I stopped either. Everyone has different reactions to all these treatments. I don't usually get side effects from meds. Now I am having this side effect of leg pain from Reclast. Maybe it has to do with age. I don't know. I just finished Evenity, and my Dexa scan showed that my bone density has gotten worse. My doctor said the fall was a perfect stress test and since I didn't break any bones, I should not worry so much.
I have 2 hip replacements so they cannot use my hips for Dexa. Perhaps that has something to do with my terrible score. -4.9 From now on, I plan to eat right, exercise regularly and specifically for osteoporosis, take vitamins, and hope for the best. I am not a fan of these meds. they say if you do Prolia it's hard to stop. I have a new endocrinologist who answers all my questions and explains things, so he might change my mind. there is another machine that measures the structure of your bones. I hope to be able to get that done one day.
Thanks for your good wishes. I hope your treatments are more successful than they were for me.
Merle

Do you know the name of the other machine that measures the structure of your bones? I have Osteoporosis but am not on the meds yet. Am a little afraid of the side effects. I wish we could really see what’s going on with our bones!

@maryanncascella My doc is doing a "test dose" of Reclast with 1 mg instead of the full 5mg. He told me to hydrate well and I will have a slow infusion. He wants me to report side effects and tolerability. This small dose will last 3 months and I can determine the size of the next dose, myself.

I am so glad you have a doctor who will help you. Mine only demand that I take the bone meds . No concern for my fear of side affects. They laugh about my fears! I don’t know why they seem so unwilling to listen . Good luck . I am considering the Tymlos . It’s what I have to be on afterwards also that concerns me . They just say my GP would help me with that. Confusing that no follow through is offered . Even my pain management threatens to not give my pain meds if I don’t do the bone meds . He says I won’t help myself . Did the Tymlos ease your pain?

I did yearly reclast infusions. I am osteopenia. I had no side effects but saw no improvement. Just stayed the same. About 6 months ago I had a pelvic fracture. No fall. Just stood up and took a step forward and the pain hit. I changed to a regemin of vitamins and exercise, on my own. Too soon to know if I did the right thing.

Hi. I'm a 60 year old male in North East Texas with osteoporosis due to a roux n y gastric bypass that I had in 2000. I've dealt with malnutrition, vitamin, mineral and protein deficiency for many years and over the past 10 years developed kyphosis, hunching over. Diagnosed with advanced osteoporosis and offered a course of Reclast. Have had two Reclast infusions in past two years with absolutely no side effects. I can't say what the benefits are other than to help rebuild bones to make them stronger again and have noticed nothing different in my life other than I did have to get some dental work done last year. Tooth extraction and my dentist refused to do the extraction due to my recent Reclast infusion. Was told that there have been instances in the past where lower jaw failed to thrive after dental procedure and that a patient had to have their jaw reconstructed.

@colleenyoung and others,
I am still not on anything. This is such a difficult decision. I have a new DEXA scheduled in October and appointments with the endocrinologist that I went to last year who recommended Reclast and am also trying to make an appointment with the endocrinologist I see for diabetes and hypothyroidism so I can get a second opinion. Both of them are very highly regarded. I am having so much trouble making that appointment though that I'm getting paranoid!

As it is I am exercising, doing weight-bearing exercises along with others, (balance, core, cardio), taking calcium, vitamins D and K. I am scared to death about the medications though. I have a history of having problems with medications. I had to be changed from tacrolimus, the 1st medicine of choice for liver transplant patients, to sirolimus due to problems. When I was on a BP medication a number of years ago I had problems and had to be switched, and recently I had to discontinue a cholesterol medication due to problems. You probably think that it's all in my mind, but actually I never read the side-effects! I went to my doctor for constant cough after she put me on lisinopril and she immediately knew that was the cause, and I was having terrible pains in my legs and a friend asked me if I was on a cholesterol drug, which I was! Who would think that a BP med could cause a cough and that a cholesterol med could cause muscle pains? I also have had problems with some PPIs and with a medication that I was given prior to transplant that that made me sick for two days. So, you can see my reluctance to start on a medication with such serious, well-known side-effects. I still do not know what I will do, I need to do a lot more research before I made a decision but I don't retain medical info well so I want to do it a bit closer to my appointments.

I am trying to follow these discussions to gain as much knowledge as possible to help me with this decision. Right now I am favoring Tymlos for starters.
JK