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My wife has autoimmune disease. She has inflammation in legs and arms.

Autoimmune Diseases | Last Active: Oct 28, 2023 | Replies (67)
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@gmanurse

Sounds like PMR symptomatically . Most start with pred 20:to 25mg. I’ve been on 20 since Jan. Tried to reduce to 15 and now back to 20 . From all credible info and my rheumatologist, it’s important to start at a dose that will stop the pain and inflammation for the most part and reduce VERY slowly

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Replies to "Sounds like PMR symptomatically . Most start with pred 20:to 25mg. I’ve been on 20 since..."
John, Volunteer Mentor | @johnbishop | May 30, 2023

Hello @gmanurse, Great advice, I wished more primary care docs understood PMR a little better and the importance of treating the symptoms and not focusing on getting off of prednisone ASAP. It's a given that none of us want to be on prednisone for a long time but not managing the symptoms extends the time on prednisone. I saw the following tapering plan on another site which I wished I would have known about with my first round with PMR.

--- Dead slow and nearly stop reduction plan (Tapering)
https://healthunlocked.com/pmrgcauk/posts/131189593/dead-slow-and-nearly-stop-reduction-plan

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twinsgyros | @twinsgyros | May 30, 2023

Thanks so much. We are going to see her rheumy in two weeks and see if she advises a higher dose. Still kinda dumbfounded that it took her primary to try a higher dose of prednisone and not her rheumatologist. God Bless.

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