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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (445)
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@johnbishop

Hello @jonnydonny, Welcome to Connect. You will notice that we moved your post to an existing discussion on the same topic so meet others who have shared their experience. If you click the link below it will take you to the beginning of the discussion.
--- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/.

Diet and lifestyle can help you manage the symptoms when tapering down on the prednisone. Here's some information that might be helpful.
--- Polymyalgia Rheumatica Diet: Do's and Don'ts: https://www.healthline.com/health/polymyalgia-rheumatica-diet

I found keeping a daily log of my prednisone dosage for the day and the level of pain or stiffness I had when I woke up in the morning were helpful when tapering to determine when and if to taper down. Do you keep a daily log?

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Replies to "Hello @jonnydonny, Welcome to Connect. You will notice that we moved your post to an existing..."
jonnydonny | @jonnydonny | May 30, 2023

I have a steroid card and record every month my dosage the last 6 months have deen a nightmare for me at 68 I was a fit as anyone you could meet fast forward to today and my body is wrecked to make matters worse I now have arthritis in both hands trying to manage both is a nightmare the pain is brutal at times no one has ever sat me down and advised me what to do the pmr is something I think I was the first patient my doctor had come across I personally think I have to see a specialist he thinks different all I'm asking for is some kind of help it concerns me the length of time I will be on steroids because of the side effects
Simple questions to ask like can i drink a glass of wine with my dinner or can i have couple of pints 1 day a week is it safe to drink or leave it alone completely I have to explore the net to get answers that's how I came across the mayo clinic yesterday at least you can communicate with people who have the same condition as myself for breakfast this morning I'm going to try weetabix as I read it was safe cereal or alpen Musli maybe you or someone else can tell me if I'm doing right cheers for taking the the time to read this

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