Medication efforts:

Posted by cloud60 @cloud60, May 25, 2023

I tried fosamax - I can’t do that my stomach hurt every time.
I now have to choose between Boniva or Actonel . Boniva is free, actonel is $56 per month but I’ve read scary stories about Boniva

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@cloud60

You think Tymlos and forteo are safe for healing wounds and jaw issues and healing future broken bones?

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That is what I have read- that Forteo and Tymlos aid in healing jaw necrosis and bone fractures (see McCormick's new book as well as several online studies). But always check with your doc and dentist!

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@vabird

I was diagnosed at age 69 with osteoporosis score of 2.8. 5 years earlier it was osteopenia. 5 years later is was 3.2, and 6 years later 3.1 (I consider this the same.) All on same machine.
These ages seem to be older than some women I am seeing, and I am seeing much worse scores at times.
Yes, no research being done--just lump everyone together, even if risk vs benefit of meds can be quite different.

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Do you take medicine ?

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See my reply to same question 2 days ago. Short answer: no.

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@windyshores

Tymlos and Forteo have been reputed to help with healing of dental/jaw issues as well as fractures. Prolia, bisphosphonates and to a lesser extent Evenity are the culprits for osteonecrosis and healing problems. We need to make sure our dentists understand the differences between the meds in this regard.

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What do you know about taking Evenity while having a metatarsal stress fracture that is slow healing? You know so much. Thank you.

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@lisanne

What do you know about taking Evenity while having a metatarsal stress fracture that is slow healing? You know so much. Thank you.

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Evenity is more complicated because it "turbocharges" bone growth but also, like Prolia and bisphosphonates, affects bone turnover and can cause dental issues (rarely). I would ask your doc but I could speculate that is isn't as healing as Forteo and Tymlos. But ask because I don't know! Have you tried ultrasound at PT?

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@windyshores

Evenity is more complicated because it "turbocharges" bone growth but also, like Prolia and bisphosphonates, affects bone turnover and can cause dental issues (rarely). I would ask your doc but I could speculate that is isn't as healing as Forteo and Tymlos. But ask because I don't know! Have you tried ultrasound at PT?

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I will ask about the ultrasound. I actually was on Tymlos but they switched me to Evenity when I had the second stress fracture. It is certainly hard to know everything. I am doing a lot of reading also. I have no choice but to use medication but I do worry about side effects and what is the best. And of course it is not the same for everyone. Thank you so much.

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@lisanne

I will ask about the ultrasound. I actually was on Tymlos but they switched me to Evenity when I had the second stress fracture. It is certainly hard to know everything. I am doing a lot of reading also. I have no choice but to use medication but I do worry about side effects and what is the best. And of course it is not the same for everyone. Thank you so much.

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Dr McCormick who wrote that book does Consults that you might be able to bc either read his book or do a consult with him for medicine planning

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@ans

Can’t remember the source but it was reputable, and they said generally the spine is impacted meaning getting worse at the earlier ages and then that will level out as you get older. However, as you get older the hips would be the scores that would become worse. It was explained or I inferred that because the spine bones are more trabecular in make up versus cortical bone and vice versa for the hip. Keep in mind the femoral neck hip area versus the plain hip also is more trabecular in nature.

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That is correct from what I understand. Greatest loss occuring in menopause with the spine losing density first, followed by the hip later on. Trabecular first followed by cortical.

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@cloud60

Dr McCormick who wrote that book does Consults that you might be able to bc either read his book or do a consult with him for medicine planning

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I called there today. End of July but I have to gather test results and mail before scheduling. Thanks!

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@windyshores

I was told recently that (bone-building) meds are definitely needed below -3.5. But if they are trending down, start earlier. Most of us are trending down! I would, personally, consider meds at -3.0. Specifically Forteo, Tymlos or Evenity.

There is a diference between treatment and prevention strategies. I think most docs have stopped medicating osteopenia.

The real problem is that insurance wants us to "fail" one or two bisphosphonates or Prolia before allowing the bone builders. And I have read that those meds can affect the effectiveness of the bone-builders to some extent.

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Well I just failed at my second bisphosphonate yesterday so I will tell the doctor. I thought I had a bad side effect from fosamax with abdominal pain. Actually Boniva was worse with very terrible gas pain and terrible extreme gas.
Well I’ve tried both. We will see what happens next. I am glad I tried both and I hope the little bit I did will not affect forteo or tymlos. I only want daily shots and I won’t accept anything else. So if I don’t get a daily kind - I guess I will ask to go back on fosamax which was the better of the two insurance covered options or I can try actonel and pay $56 per month out of pocket

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