← Return to Health seems to be deteriorating: CSS? Fibro related?

Discussion

Health seems to be deteriorating: CSS? Fibro related?

Chronic Pain | Last Active: Jun 15, 2023 | Replies (34)

Comment receiving replies
@rwinney

Hey there! I'm glad you found encouragement in my words... that's what I'm here for!! It is super important to hear when you're going through a confusing time. Now that I think about it - the private FB group I'm referring to may just be for Florida Pain Rehab graduates. We received info about the FB group called, "Living The C', with our packet on our final day. Which PRC did you graduate from? Rochester, I think you mentioned. I recommend contacting them and asking.

I think the best answers your PRC team can give you, or would give you, is to stick to the principles of the program no matter what is thrown your way. It is a solid foundation to keep progressing with. I've got two kids in their 20's and although they have seen me go through "my stuff" they have not gone through these degrees of chronic pain or conditions themselves. If they did, I would offer empathy, with a little tough love, and help educate them. Who is in your corner as a support system?

Do you mind explaining more about your paralysis? How are you affected by it? Has any doctor told you it is permanent?

Jump to this post


Replies to "Hey there! I'm glad you found encouragement in my words... that's what I'm here for!! It..."

I don’t really have a support system:/ I have my family but they have promised helping me get to the Mayo Clinic several times without following through at all over the past year so I am finding that support system in time with therapists, supportive doctors, pain groups, and of course my friends- but I don’t like to put anything on my friends even what I’ve been going through.

I can’t go back to Mayo Clinic any time soon because of financial circumstances so I have to make the best of my local resources and of course the knowledgeable I learned from PRC too for now. Not too sure about my paralysis symptoms doctors aren’t really so far that I’ve seen either. It seems to be getting worse is only thing I’m noticing