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Could this be chronic pancreatitis?

Digestive Health | Last Active: Dec 17, 2023 | Replies (26)

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@missingthebeach

@ladyaceintx1 thank you for sharing your symptoms and experiences. While I do not get the nausea I do find myself not eating to avoid the pain it is causing which is affecting my weight 🙁 I've been trying to eat smaller meals more often and adopted the pancreatitis diet as well. I am able to tolerate small bits of butter but am cooking with coconut oil most often now. With thirst its not new to me so I haven't noticed an increase, since I've been pre-diabetic for over 16 years I am always thirsty and always visiting the bathroom because of the insane amount of water I drink. I found a pancreatic specialist that studied at mayo and spoke with him a week ago. We did some additional testing to see whether or not I am absorbing vitamins that typically start lacking in cases of pancreatitis. The results will be back sometime later this week. While I have the same pain symptoms there is nothing in imaging to suggest the pancreas is the source of my problems including all of the other testing I've been through. He did confirm that 50% of chronic pancreatitis cases occur without ever having acute pancreatitis and that it's a possibility. He did let me know the iron deposits are there to stay but isn't sure that it's the source of the pain, it's impossible to diagnose without other physical issues appearing in imaging or tests (enlargement, duct dilation, calcification etc). We are in a wait and see status for now. He mentioned continuing low fat low sugar diet and adding antioxidant rich foods which help the pancreas heal. It may have been the infection from earlier this year, again there's no way to tell.... I have been given nortriptyline to help with the nerve pain. It's helping me sleep but I am having a hard time waking up in the morning - pretty much knocks me out for 10 hours every night. Pain has been very mild and minimal these last two weeks, even before starting the drug. The bizarre feeling under my rib as though something is stuck underneath it - I am not really sure anymore I feel like I am just getting used to it at this point. I am missing caffeine as well, is stopped drinking diet soda's and coffee and replaced them with ginger and peppermint teas. I am trying caffeine free diet coke this week to try and bring some normalcy back into my diet and life. Oh I also now have really low blood pressure, again no idea on the cause - maybeee the weight loss. I am clocking in at 90's/60's and get dizzy when I stand after periods of sitting or bending down. Yet another thing we're monitoring. Thank you again for sharing your experiences with me and what you're doing to control symptoms < 3

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Replies to "@ladyaceintx1 thank you for sharing your symptoms and experiences. While I do not get the nausea..."

@missingthebeach
Thank you for your reply and the additional information. I'm interested in hearing about the types of tests that were ordered to determine the Vitamin deficicies? Also, can you share whether the diet coke, caffeine free is worth trying? I'm mainly only drinking water with a little bit of fat free, lactose free milk. I miss being able to drink coffee, have a glass of wine occasionally with dinner and having to watch everyone around me eat and drink whatever they want. But, I remind myself how painful the attack of acute pancreatitis was and I'd do anything to avoid it happening again.
Let me know how you're feeling.