Oh, no problem. I actually didn't even know they had an EDS Clinic in Rochester. I live in Illinois and was evaluated at Mayo Rochester in 2017 (but they missed the diagnosis, and I have other intertwined diagnoses). Last year, my doctor suggested I try to put in another appointment request at Rochester, and it was promptly declined. When I spoke with someone on the phone there, they told me about the EDS Clinic in Jacksonville. He explained while they treat EDS at all locations, Jacksonville has a dedicated clinic. And they allow self-referrals in this specific clinic, whereas at Rochester in particular, it can be very difficult to get an appointment. It almost feels like an application process, and I didn't get in, so that wasn't an option for me. I especially liked how at the EDS Clinic in Jacksonville, they lowered the barriers to get an appointment. But I hope it works out for you, as Rochester would be much closer!

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