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Anyone have cancer with unknown primary?

Cancer | Last Active: Nov 9, 2024 | Replies (163)
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@hopeful33250

I appreciate your post, @elliwiemers. I do admire your persistence and healthy lifestyle as you have dealt with some difficult health issues. Like you, I have had three surgeries for NETs, but have never had any symptoms. That seems to be true for many of us with NETs.

As you have not mentioned PRRT, I'm guessing that was not a recommended treatment for your type of NETs?

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Replies to "I appreciate your post, @elliwiemers. I do admire your persistence and healthy lifestyle as you have..."
elliwiemers | @elliwiemers | May 29, 2023

Lutathera is PRRT. Large cell poorly differentiated NET is not known to have the presence of somatistatins - it was another miracle, along with the HERS2+ discovery from last year. I am sooo happy to have it as an option.

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