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GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:20am | Replies (277)
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@valerie6062

I too have LCA , 80 years old and live in Australia. Don't know but reasonably sure that Actemra is not available. My rheumatologist has not mentioned it. At the moment I am coming down for 2nd time from 50mg to now 12mg. Am taking advice to take it very slowly . I don't want to go up again. My dr suggests 10 mg by next time I see him which is in 3 weeks. I'm not rushing. Too traumatic to have to go up again.

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Replies to "I too have LCA , 80 years old and live in Australia. Don't know but reasonably..."
grammy82 | @grammy82 | May 30, 2023

Yes, @valerie6062 , please, take it slow. It was my experience with my rheumatologist to taper by .5mg every three to four weeks once I got to 10(and I rode the up-and-down roller coaster too). He also advised that if I felt a bit 'off' just to go an extra week or two on the same dosage. Slow=win, or at least you are giving yourself the best opportunity. I'm holding at 3 now for about 6 weeks because I'm going to be taking a few flights and doing a lot of things I don't usually do!
Good for you, you have come this far, don't rush.💞

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