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DiscussionFacial and lip sores from lanreotide injections for NETs?
Neuroendocrine Tumors (NETs) | Last Active: Oct 22 8:12pm | Replies (25)Comment receiving replies
Replies to "I have sores and use Nivea lipcare and lipcare with calendula ( from Europe). I also..."
Pavlina60, I also had scary hair loss beginning about a year after I started lanreotide injections. My dermatologist suggested using Rogaine for women, but it was messy and seemed to make my hair fall out faster.
I began taking 1000 mg of Biotin daily about 5 months ago, and my hair has stopped falling and is growing back.
I don’t know if the hair loss was related to the lanreotide, but the Biotin certainly is making a difference.
Good luck with your treatments!
Going for my 3rd injection of 120 mg Lanreotide next week. No facial or lip sores. Have you ever had a cold sore (hsv) in the past? (I never have.)
If so. I'm wondering if the Lanreotide is causing the cold sore virus to flare up (?). Or does this feel different than a cold sore?
As far as hair loss: the "consumer use & disclaimer" information sheet I was given for Lanreotide lists thyroid problems as a possible side effect. Low thyroid function is famous for causing hair loss. My thyroid hasn't worked for 20+ years, so I take synthroid. My hair is still thinning- but nothing alarming- even after 20 years, I have no bald spots. Maybe you could ask your Dr to add a thyroid function test to your next blood work. If the Lanreotide is messing with your thyroid hormones, that is something you should know.
May you be blessed with Peace, even through the chaos of cancer!
Pam (NET w/ small intestine origin- spread to liver, bones, & peritoneal lining. Diagnosed 1/24)