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Osteoporosis & Bone Health | Last Active: Jun 25, 2023 | Replies (47)
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in reply to vabird
I think that your experience is precious. It can be of help to many others, and it is interesting to understand what makes you so special. It almost impossible to do it without a study with other participants like you, and this is possible only of clinicians would be interested.
I would like to ask you, how many years before you were diagnosed with osteoporosis ?
Replies to "in reply to vabird I think that your experience is precious. It can be of help..."
Addition to my previous response:
We do have the FRAX score, which is said to be based on the experience of a very large population. I'm not convinced it takes enough variables into account.
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I was diagnosed at age 69 with osteoporosis score of 2.8. 5 years earlier it was osteopenia. 5 years later is was 3.2, and 6 years later 3.1 (I consider this the same.) All on same machine.
These ages seem to be older than some women I am seeing, and I am seeing much worse scores at times.
Yes, no research being done--just lump everyone together, even if risk vs benefit of meds can be quite different.