@becsbuddy, and all...Sounds like you've had a delightful respite. I'm happy you had this time away and a good time with your family. It stings a bit when I sit in my recliner or hibernate most of the time. I'm doing better in many ways, Becky. Worse in others.

Now, I'm having back and full-body pain. I spent yesterday on my patio cleaning and filling feeders, pruning some damaged dead leaves-nothing big or heavy work..., and spraying to deter rats along the fence and walls/doors/windows/cables, etc. I obviously overdid, but doggone it, it needed to be done, was a cool lovely day. I enjoyed most of it. I should have stopped an hour sooner, but...

Oh, I know what I did! Oops. There were 10 bags of sand from last year's hurricane season to protect my condo from flooding. The handyman put them outside the fence under shrubs. So I, in my glorious wisdom, decided they had to be emptied and used around the shrubs/fence/plants to help with drainage. I added river rock and granite chips to create a drainage barrier. And, I wanted to clean up the area as it was unsightly. So, I emptied all the heavy bags. Nuts!

My mid and lower back are seizing in pain. I was up all night in pain in every joint and muscle. I had a sinus headache from the mold and mildew on the patio and in the sand. So, dumb, shortsighted, and nuts.

I was at Mayo all day Wednesday from 8 a.m. beginning with hematology, then several hours with a nuclear full body scan. I could barely walk, with my pink walker, out the door, to my car... I was so exhausted. Literally. Tiny steps, bent over, exhausted. Got home and went to bed.

So, yesterday, I did the patio thing. I'm paying for it. Hope all improves and I can walk later today. I'm using steroid cream on my back, taking my Relief capsules, and resting.

Lesson for everyone on this site-we are much more fragile than we believe or accept. I've fought that concept for decades, pushing through to get things done and prove I'm able when I'm not. Typical of autoimmune patients. We refuse to allow our bodies to be ill, we fight rest. Thought I'd moved past that, but nope. So, my dear Becky, I'm paying the price.

The body scan confirmed Paget's Disease of the skull and a bunch of bone deterioration. Dates back to severe osteoporosis at 35 with unknown cause, no treatment but oral calcium. The endocrinologist I saw last week thinks it's due to celiac disease that didn't have a name then. I'll probably get an annual Reclast IV infusion. The hematologist is prescribing regular iron IV infusions when bloodwork shows ferritin level is lower and profile numbers high, every 3-4 months. So, darn it, let's fix it even if we can't fix the cause. Finally, action.

We're having strange weather here. Yesterday it was so cool, really cool all day and chilly after dark. Crazy! I've lived in northern Florida for 62 years and never had this cool weather, it's almost June. Incredible.

Enjoy home and rest well. Welcome the rest. Blessings. Elizabeth