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Unbearable Neuropathy

Neuropathy | Last Active: Sep 25, 2023 | Replies (67)

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@cher27

Like you, I have extreme burning pain in both feet (although, one is often worse than the other). I simply soak them in cold water. Not freezing, ice water but colder than just "cool", until the heat is drawn out. I keep a small, portable fan under my desk & by my feet in bed. It seems simplistic & a bit silly, but it stops the pain. I am retired, so I am able to do this several times a day. I even have these soaking "boots" to use in my office, which are less obtrusive than the foot soak bucket I keep in the bathroom: https://www.amazon.com/dp/B09XQQFVKB?psc=1&ref=ppx_yo2ov_dt_b_product_details
My feet are also deep red & look horribly inflamed, but my doctor, vein specialist (I had vein ablation), podiatrist & pain doc have no clue as to why. It started in 2021 with mild redness on the top of my right foot & has spread to both feet & ankles, top & bottom, over the past year & a half. It's the reason I went to a vascular doc in the first place. I guess it's a medical mystery, which seems unbelievable to me. I take 2100mg of Gabapentin per day & recently started taking one 10-325 Hydrocodone in the evening, which doesn't completely take away the pain, but takes the edge off & gives me some relief. I can bear the pain during the day, but after 7-8:00 at night, it's excruciating. I quit going to my neurologist 2 years ago. He would just give me drug samples & tell me to come back in six months. Neurologists can diagnose, but neuropathy can't be cured. Believe me, I feel your pain.

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Replies to "Like you, I have extreme burning pain in both feet (although, one is often worse than..."

Well, I didn't just get this peripheral neuropathy out of nowhere, and that makes me incredibly angry.
It gradually appeared after an orthopedic surgeon did revision surgery November '22,
Most of my inflammation is at the bottom of the foot, and walking is torture.
Your mild redness could be CRPS? which I have in both big toes. Mine hasn't spread luckily, but who knows what else these awful conditions bring?
I'm sure your life has altered the same as I, and I truly hope you can sleep better at night. I take Pregabalin plus Lorazepam which helps a bit with me.