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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@kle

Thank you for sharing your experience ralphysmom, It is a terrible disease and I hope it gets better and better for us each day. When the symptom first started, I voiced my opinion to several doctors that this was likely due to Covid vaccine, but since it's earlier in the pandemic, they didn't think it was related. Some even encouraged me to get a booster. Now it appeared that there are more and more reports of covid vaccine associated SFN, although there is no real study to establish cause and effect yet. I hope someone will study and shed more light on this soon. I got sick several times during winter of 2019 with cold and gastrointestinal symptom (vomiting and diarrhea) but then there were no diagnostic test for covid, so I' was not sure if I had covid. I had several tests for covid antibody in late 2021 but there were all negative until mid 2022 when I tested covid positive by PCR but I had no symptom and antibody test about three weeks after were negative, so I was not sure if the PCR test was real.

Regarding your skin biopsy finding, I wonder if additional biopsy in other areas of your body would turn up positive. It also could be that you are healing well now so the skin biopsy test is all negative.... Do you have symptoms as well in the upper body areas? Are doctors still helping you manage the pain or do you find lidocaine is sufficient to control pain in general? What else could be done now to reach a final diagnosis of your condition? Lidocaine cream does help me but the effect is not long. Right now, whatever I eat causes stomach gas and bloating so I avoid medication and supplement for now. I'm working with a nutritionist to try to fix this issue too. I hope this gets better too. Thanks again for sharing your experience.

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Replies to "Thank you for sharing your experience ralphysmom, It is a terrible disease and I hope it..."

Hi @kle, for whatever reason they only do that area, foot/ankle. The skin test was done when it was acute. I had burning paresthesias to both my arms without temp sensation changes like in lower body. Similar but not exactly the same. My fushion surgery seems to have helped the arms. I dont require medication for the lower but I did when it was acute. I had Lidocaine patches put on lower body areas and it was enough maybe to distract my mind off the pain but wasnt too helpful. I have a different neurologist who has a high interest in MS. He is doing MRI imaging and serum lab tests. Not done yet but soon. I think the lower sx's could stem from my neck b/c I have been having more burning at the cervical surgery site lately and it is "waking up" some of these other upper and lower area but still not as bad as last year. I dont know if Covid was an initiator or an agitator of these lower symptoms but nervous system can be reactive and activate other areas. I dont know if Ill ever know. I try to eat well, whole foods and more vegetables and less meat. No processed food and I like to exercise. Best wishes to you and can keep the line of communication open as needed. Take Care