Connect
← Return to COVID vaccines and neuropathy
Discussion
Comment receiving replies
Your symptoms sound very similar to mine and I was pretty devastated last year when this came on. It happened about 2-4 weeks after getting Covid and I had the Pfizer shot twice the January before (2021). Im not sure if related to Covid but timing appears impeccable, started out the sole of my right foot felt as though I walked barefoot on a hot road, burning and when cold(winter time) felt colder than L foot. It was almost ascending in nature going up between my things, not too much on the lower legs. The inner thighs was like a strip from knee to groin and was intensified if sat down. It effected my R buttock and my groin area. I had to avoid laying on my R side for months. It has subsided though but appears permanent. I had a SFN biopsy and it was negative, which they arent 100% accurate either. It says that right on the results. They should stop and give more lidocaine if you feel it too much. Its sounds tough but its tolerable. I am currently being checked for MS but earlier testing reveals that to be negative. Did you get Covid? I hope this helps and know that it may get better.
Replies to "Your symptoms sound very similar to mine and I was pretty devastated last year when this..."
Connect
Thank you for sharing your experience ralphysmom, It is a terrible disease and I hope it gets better and better for us each day. When the symptom first started, I voiced my opinion to several doctors that this was likely due to Covid vaccine, but since it's earlier in the pandemic, they didn't think it was related. Some even encouraged me to get a booster. Now it appeared that there are more and more reports of covid vaccine associated SFN, although there is no real study to establish cause and effect yet. I hope someone will study and shed more light on this soon. I got sick several times during winter of 2019 with cold and gastrointestinal symptom (vomiting and diarrhea) but then there were no diagnostic test for covid, so I' was not sure if I had covid. I had several tests for covid antibody in late 2021 but there were all negative until mid 2022 when I tested covid positive by PCR but I had no symptom and antibody test about three weeks after were negative, so I was not sure if the PCR test was real.
Regarding your skin biopsy finding, I wonder if additional biopsy in other areas of your body would turn up positive. It also could be that you are healing well now so the skin biopsy test is all negative.... Do you have symptoms as well in the upper body areas? Are doctors still helping you manage the pain or do you find lidocaine is sufficient to control pain in general? What else could be done now to reach a final diagnosis of your condition? Lidocaine cream does help me but the effect is not long. Right now, whatever I eat causes stomach gas and bloating so I avoid medication and supplement for now. I'm working with a nutritionist to try to fix this issue too. I hope this gets better too. Thanks again for sharing your experience.