You can call the EDS Clinic directly and ask to be put on the wait list; hopefully it's still open, as per the post! https://www.mayoclinic.org/departments-centers/ehlers-danlos-syndrome-clinic-florida/overview/ovc-20522975

Unfortunately, I haven't had the smoothest experience, but I'm trying to be understanding, as it's a relatively small team and newer clinic. Good luck to you though.