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GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)
Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:20am | Replies (277)Comment receiving replies
That’s such a great point. It’s okay and normal to feel disappointed or even guilty for needing to take a medication a long time or lifelong, as long as we can remember it’s not our fault. As my dad’s rheumatologist says: “We need to follow what the body decides and go from there.” Cheers!
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It is so true...we somehow feel responsible...or accountable for 'taking' steroids. I think the thing is...No; it is not an ideal drug so we get all that negative feedback like telling a child...bad, bad, bad. Well, in some cases, it is all we have.
But, it is a lifesaver and our only sword to do battle with some of these diseases. I want to move. I want to see. I will deal with the side effects in the process.
When we need to take it...our body needs it to help us manage the disease. Our body will tell us when we can end the relationship. Yes, Pred can be difficult, but the consequences of not taking it can be worse.
My goal has been a decent quality of life. 💞