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@nyxygirl

@pkalkstein noted:“While PMR doesn't damage the muscles, both inactivity and prednisone can cause them to atrophy”. I am interested to see this preface to your comment because that is what I was trying to get my Rheumatologist to explain, or reassure me. I asked specifically are there any limitations on physical activities during my Prednisone dosing ( increasing from PCP’s 15mg to her 20 mg on May 22) . The orthopedist was very clear when I tweaked my knee form Zumba - NO twisting, NO jumping , NO stepping ! Because I found a pattern of prolonged morning stiffness of arms /shoulders if I had had my arms overhead 2 days prior, I took it upon myself to keep my arms quiet for the last 5 days.
I notice @avidhiker pointing out how and when her restoration work uses her arms ,shoulder , hands. AND Birding YES ! MY routine has been take walk to nearby pond , which really loosens up my hip- morning stiffness. I only have to raise the binoculars to my face - even with VERY stiff shoulders - I can do it and focus on something else entirely. Waking up so early with PMR is advantageous for seeing more birds ! HA !

@janiceem I also am doing Aqua PT this month (actually for my knee injury in Feb- it coincided with PMR Dx - that was how far out they were scheduling!) The therapist is very keen to know more about PMR and is really helpful and I go to aqua Zumba to do those exercises to some great music. Sadly, one day when my shoulders were SO stiff, I tried to float out of the way of someone and started to sink - I realized what a dire situation it was to have the PMR pain create such a self-limiting situation that I didn’t float properly.

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Replies to "@pkalkstein noted:“While PMR doesn't damage the muscles, both inactivity and prednisone can cause them to atrophy”...."

I returned the other day from Acadia National Park. For many years my wife and I have climbed one or more of the mountains in the park, but this year, thanks to PMR, I could manage only a couple of level trails. It is hard to come to grips with our diminished abilities. BUT it is important to stay active or else we lose all muscle tone and have trouble navigating the world. So gradually I got back to lifting my 15-lb dumbells and I am even splitting wood again, but slowly and not pushing too hard. PT can be really helpful.
Earlier I was very stiff and sore in the morning. However, splitting my dose and taking 5mg of prednisone at 1-2 AM gave me mornings free of pain.