I have GCA and I'm sure a touch or two of PMR.
I wanted to share this with you~~my first boss, an orthodontist and his lovely wife, a nurse, and I have been friends for over 40 years. The night I was taken to the ER because I was suddenly blind in one eye, I vaguely recalled some things he had said years ago; 23 to be exact. It was something about PMR/GCA, autoimmune, steroids...in kind of a fog on the gurney, I called him. Yes, his wife had both, and no matter what, if she stopped that last milligram of prednisone, her symptoms returned. So, for over twenty years, she still took 1mg each morning. Maybe that is what your body is saying.
There is a rheumy in England, Dr. Bashar Dasgupta (well known and respected), who simply believes some patients can remain on low doses for life with no problem. At present, I am at 3 mg after three years and will continue to reduce at .5mg every three to four weeks (after a trip), and we shall see.
Hopefully, that story about Pat helps. Some of us get so caught up in getting off pred that we feel guilty if we can't. No personal involvement is involved, your body talks to you. If your body says no...I know if I wound up on .5 or 1mg...I'd be happy.💞