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@nyxygirl

Dear - I remember your comment about and worsening symptoms 2 DAYS LATER- I could be you ! I am a 66 yr old female in the Boston area. While keeping a pain journal rehabbing from a tweaked knee in Feb , aqua PT appointment did not begin until April. This is when I started to note bilateral pain in arms AND legs ! Fast forward to to a visit to urgent care mid April after a session using the bike at PT - My pelvic girdle/legs had terrible pain in morning 2 days later . I saw PCP at end of month , Rx for 15 mg Prednisone , which improved greatly the lower extremity morning stiffness. I also had a fortunate and timely-scheduled Rheumatologist appointment by May 22. She increased to 20 mg this past Monday, but as of yesterday we had to increase to 30mg and voila - this morning is the first time I have NO morning stiffness in 1.5 months ! My pain journal has two additional times at least where 2 days after using my arms above my head, the shoulder morning stiffness worsens and is prolonged into he mid day or even later! One time was blowdrying my hair plus doing pruning on a shrub taller than me ( so reaching up A LOT). When I was doing low- Impact Zumba for my knee , pre-Dx , I thought -well there’s nothing wrong with my arms -so I was waving them all-around to the music. Your comment about using a push mower uphill -do you also live in New England ! LOL . Are you willing to ask the same question i did - if the goal is to be where i was BEFORE PMR - then the Prednisone dose is not getting me there .

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Replies to "Dear - I remember your comment about and worsening symptoms 2 DAYS LATER- I could be..."

I'm sorry to hear that your pain keeps coming back. My doctor advised me 8 days ago to increase my dosage to 20 in the morning and also take 10 at night, and splitting the dosage (at least for now) seems to have worked. Mornings have been pain-free, although I'm still not "back to normal" yet. I still have some hip tightness and minor shoulder pain that still prevents side-sleeping, but I had not flare-ups 2-3 days after yardwork on the new dosage like I had on the lower, "un-split" dosage. We'll see what the next week brings, but if it goes well, I suspect my morning dosage could be tapered, then I'll keep my fingers-crossed! I'm not sure if I'll need to adjust to a new normal.

I actually live in central Ohio, where there are few hills, but our yard just happens to be hilly, the only one like that on our street. I guess mowing has been making up for all of the running that I haven't been doing lately! Hope to get back to running soon.