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Unbearable Neuropathy

Neuropathy | Last Active: Sep 25, 2023 | Replies (67)

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@ray666

Good morning, Louise. I read your post with interest. However, I'm one of the blessed persons with peripheral neuropathy but have yet to suffer any pain, none directly that's the result of my PN. What caught my interest in your post is your saying, "since [you are] walking abnormally, [your] foot is ruined even further." Even though I've no PN pain, my balance is all screwy, and my gait is awful. Years before I was diagnosed with PN, I knew I had severely flat feet, for which I've worn orthotics for decades; a left knee that's chock full of arthritis (my right knee is already a prosthesis); and hips telling me daily they too are now stocking up on arthritis. Since my balance and gait problems began (10 years ago?), all of these long-time aches have only gotten worse. Like you, I'm also wondering to what degree my balance and gait troubles are only adding to my aches elsewhere (ankles, knee, hips). More urgently, what, if anything, can I do about it? It's very easy to feel ganged up upon when different parts of the body all start complaining at once. I wish you the best in finding relief, Louise! ––Ray (@ray666)

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Replies to "Good morning, Louise. I read your post with interest. However, I'm one of the blessed persons..."

Hi Ray,

I have a high arch, and have been overloading my gait onto the metatarsals and toes. The shape of my foot did change with a hollowness in the middle if that makes any sense. My sesamoid bone is large and inflamed, and when I compare both feet, the right (bad) one is thinner (less stability) and skin is tighter than the left one.
Feet are the key balance, and if there's something wrong gait-wise, it CAN affect your knees, hips, and arms. Also muscle atrophy sets in from lack of motion. Exercise with easy weights - gentle squats. arms, etc. For balance, I try standing on one leg (usually with hand on wall) Do this daily, and your balance may improve. What I don't understand is the so-called specialists never look at both feet, and exclaim - I know what you mean, I can see the difference. Here's to all the pain-free specialists who absorb lengthy knowledge, have even written books, but have no idea ABOUT your acute pain struggles. Wishing you all the luck in your endeavors, and hope you also find peace from pain.