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I am finally giving up COVID can have me
Post-COVID Recovery & COVID-19 | Last Active: Jan 7 11:54am | Replies (88)Comment receiving replies
I am, was, a RN on a busy Surgical/Medical Unit. Told I did not get infected at work due to the practices of safety glasses and gowns and masks. Now almost 2 years later I was denied any disability and am looking at working in a grocery store part time. I can not stand in one spot, walk without shortness of breath or think or process without headaches. I can not always speak and remember what was said. I am not giving up. Fatigue and pain and confusion is part of who I am now. I am still grieving my loss of self, but one day at a time is where it's at. Family and friends don't always understand, but I will continue. A good therapist helps too. I do wish you well as only we can understand fully the emotional and physical toll of this disease.
Replies to "I am, was, a RN on a busy Surgical/Medical Unit. Told I did not get infected..."
That is ridiculous saying you couldn’t get Covid at work because you wore PPE. Everyone did and many got it anyway and some died! You need to apply for disability. I’m hoping that now that the pandemic has lessened, that more research will be devoted to long Covid.
I know you said you are a nurse and can’t work. I’m curious if you tried hydroxychloroquine? Long Covid mimics lupus for some. You have the fatigue like me and I couldn’t stand and got to the point i could hardly walk. I decided to treat the symptoms. The rheumatologist told me Covid damage the cells so the treatment for lupus would not work. I figured I didn’t have a choice. I knew I couldn’t deal with it anymore. It took about 3 1/2 months to kick in and I’m so glad I stuck it out. Research it. No it will be confusing because in testing when you put in Covid and hydroxychloroquine that doesn’t work that’s because it takes about three months to kick in. There are some people anti-VAX who would get Covid and think you just take that because Trump took it. That’s completely different. We are not active with the virus right now. We have long Covid so it’s different. It’s the drug of choice for lupus.
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I was full-time in the grocery store before contracting CoVid last May. My PCP insisted I go back to work at 4 hours a day telling me it would increase my strength and energy. He obviously never heard of Post Exertional Malaise. But I had no choice without a doctor's note if I wanted to pay bills and have health insurance. I came home crying from the pain every day even though my work tried to accommodate me the best they could. And I had no energy or enjoyment to do anything when I wasn't at work. My son would rub me with a pain relief cream after I soaked in CBD Epsom salts and I'd eat an edible. An hour before bed I'd take 5 mg. of melatonin and eat another edible, which let me sleep 10-12 hours. It isn't living. It is just surviving, barely. I also have shortness of breath, lightheadedness, fatigue, and gastrointestinal issues. I'm on short-term disability now, but that only lasts for 12 weeks. I've been off 3 weeks now, and the only difference is the pain is less as I can rest when my body tells me to (10-15 minutes of light exertion usually is it) instead of pushing myself 4-5 hours at work.