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Welcome @sirmac. The exact cause of polymyalgia rheumatica is unknown, but a combination of genetic and environmental factors is thought to be responsible. Conditions without a cause are frustrating.
@ctjpmarie asked the same question about how PMR started for members, so I moved your question to this existing discussion:
- How did your PMR begin? https://connect.mayoclinic.org/discussion/how-did-your-pmr-begin/
I did this so you can read the "start" storied of fellow PMR members and connect with them easily.
What treatment is your doctor suggesting?
Replies to "Welcome @sirmac. The exact cause of polymyalgia rheumatica is unknown, but a combination of genetic and..."
He started me on prednisone 3 .5 tablets once a day for 2 weeks then 2 1/2 for 2 weeks then 2 for 4 weeks then 1 1/2 for 2 weeks then 1 for 4 weeks then 1/2 no time limit. I would get head aches, sore neck, shoulders sore back sore hips, the pain would make me nauseous . My doctor changed my medication to 1/2 .5 milligrams tablet to 1 .5 milligram tablet for 4 to 5 days the back to 1/2 .5 tablet
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Unfortunately, our doctors only answer is simply taking steroids with that said, a friend of mine, who actually works at the CDC forwarded to me a Dr., from New Zealand, who supports liberal supplements.
My husband, who is the one who has it has been taking them religiously.
We’re not sure if it’s helped at all but of course, being on steroids things like vitamin D, and all that kind of stuff is very important. So we’re sticking with it.
He’s tried to taper down a couple times but it didn’t work. He’s only had it since last October 22 of course but such a painful condition I’m not saying that lightly.
The good news is that his torso has definitely improved while his hands are still very swollen and painful-ridiculously south that even my cannabis THC infused coconut oil doesn’t seem to help him one single bit. 🫢☹️