← Return to EDS Clinic Updates, EDS Awareness

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@macrdo

I would like to get in for an appt. Been waiting awhile now as was told they didn't have but one doctor and was swamped and wasn't taking any new patients at that time.

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Replies to "I would like to get in for an appt. Been waiting awhile now as was told..."

You can call the EDS Clinic directly and ask to be put on the wait list; hopefully it's still open, as per the post! https://www.mayoclinic.org/departments-centers/ehlers-danlos-syndrome-clinic-florida/overview/ovc-20522975

Unfortunately, I haven't had the smoothest experience, but I'm trying to be understanding, as it's a relatively small team and newer clinic. Good luck to you though.

Is this clinic just for diagnosis and initial care planning? In other words, is there any multidisciplinary care with EDS expertise for people who are diagnosed but suffering from several interrelated issues and symptoms that cannot be treated piecemeal or by traditional (non-EDS) treatments