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Triple negative invasive lobular breast cancer

Breast Cancer | Last Active: May 28, 2023 | Replies (12)

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@ssmab

You are being treated at a great place so that is good. My only real treatment besides the double mastectomy for the Invasive Lobular is the Zometa infusion that is also an osteoporosis drug. Since it turns out that women who have had breast cancer and and have been on Zometa for osteoporosis have a higher 10 year survival rate than women who have had bc and didn’t take Zometa, then that drug is used to help prevent against recurrence. I’m not sure if you don’t have any osteoporosis at all if they could use that for you. You could certainly ask your oncologist at MD Anderson.

Because I had a double mastectomy ( since I had a different type of cancer in each breast and I also had LCIS, which is a marker for breast cancer, a double mastectomy was the best thing for me to do) and my margins and lymph nodes were clear, and the lobular was stage 1a the Oncologist didn’t think chemo would do anything. Was your triple negative lobular in the lymph nodes? If there is node involvement or it has gone further then they try chemo.

I am eating a lot of vegetables and fruit , especially broccoli which I have read is an anti cancer vegetable. I have been limiting sweets which I have read can help and I have been doing a 30 minute brisk walk almost every day. Those are other ways we can help ourselves. I also do the optimistic self talk every day for 15 minutes. I do believe our thoughts have a great impact on our health. I say “ I am going to stay in remission, I am going to stay cancer free, I am a survivor and I will remain a survivor. I will be just fine.” I repeat that over and over for 15 minutes. Every single day. And I pray a lot!

I have recently read that doing “intermittent fasting” of 13 hours a night ( that’s finishing dinner say by 7pm and not eating any food for breakfast till 13 hours later or in this case, 8 am (or however you want to have the 13 hour fast work for you) may help to prevent breast cancer recurrence. I am going to ask the oncologist at my next Mayo appt in July if there is any validity to this intermittent fasting of 13 hours in preventing recurrence. Till I see him I am doing it. I have been doing it since I read about it 3 weeks ago, and since it doesn’t hurt us, I figure why not do it. It has been very easy to stick to it and I feel it may help me. So why not? You could ask about it at MD Anderson and see what they say.

I know it’s scary having lobular that is triple negative but I have decided that I can do my very best to stay as healthy and optimistic as I can and I feel that will really help me. Keep believing that you will be a survivor. We can be and we will be.❤️

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Replies to "You are being treated at a great place so that is good. My only real treatment..."

I am glad you are doing well. I had Triple Negative lobular 2A no lymph nodes involved but large tumor. They gave me fec chemo and then taxol. Then masectomy and 5 weeks radiation. After that xeloda for 9 months and I also have Zomeda every 6 months for 3 years.
I also fast between 14 and 16 hours almost every day. I also walk at least 150 minutes a week they say this helps recurrence as well. I eat vegs, lots of fruits, and drink green tea. Hopefully this will help maintain remission. Good luck to everyone on this journey and best wishes.