Connect
← Return to Am i Having Seizures
Discussion
Comment receiving replies
I’m finally getting a good team of doctors with one who wants to look at me and my issues as a whole person not passing me off to one doctor to the next as not they’re problem. I’m fighting for my life and I’ve been going through everything since I was a small child, I am 46 now.
Replies to "I’m finally getting a good team of doctors with one who wants to look at me..."
Hi @chefdecemberskye
Happy to hear that. I good doctor who treats us as human beings makes an enormous difference. At least it was what I have experienced. After being treated by 8 different doctors who prescribed me medications I could not stand, I finally found an epileptologist that respects my nature and body. So, keep fighting!!!
I have recently joined a study by a neurologist on the relationship between the gut and brain in people with neurological disease as my seizures have reduced by 60% when I took gluten out of my diet. I am now on a Fodmap diet as I have been diagnosed with SIBO (small intestinal bacterial overgrowth) most probably caused by some medications I took in the past. As you also have gastro issues, worth investigating that profoundly with a gastro and treating it. It might have a great impact on your life and epilepsy
Keep walking, always!
Chris
Connect
Oh, my @chefdecemberskye Yeah, I spelled it!
That is some serious good news in that post!! #l that you finally have a comprehensive medical team because that is just what you need. They must be really qualified to look at ALL of you. #2 That you are 46~~you have so much ahead of you to be enjoyed for many years once you have a measure of treatment that gets things under control.
Since my seizures started at 15 in my senior year of high school, I didn't make my graduation. Though I angrily vowed not to return to school, when September rolled around, off to school I went, and I graduated in 1958. As a snarly teen, I griped it was with a bunch of strangers. That wasn't true. One of the kids in my class was my brother. 😉😉 You are a strong survivor, be your own advocate; nobody knows you better.
I've enjoyed a full life, and even now, at 83, I feel fortunate. I have a strong will and that is what it takes for somebody like you too!! I know you are strong because of what you have experienced and are still fighting for 'better'. 💞 Please keep in touch......